“Remember when you had a bad cough and you went to the doctor to make you feel better?" their mommy said. "Mommy has to go to the doctor sometimes too. But, I don’t have a cold. I have something called lupus. It doesn’t make me cough. But it can make me tired and it can also make different parts of my body hurt. Sometimes I even get a rash on my face that is the shape of a butterfly.” "My Special Butterfly" is a book to help children understand a loved one's life with lupus in a way that is easy for them to follow and sensitive to their feelings. It tells the story of two young siblings, Olivia and Jack, and their thought process as they cope with their mommy's sudden lupus symptoms. Written in a way that children will connect with, it breaks down some of the most commonly asked questions about the disease, while focusing on the parent/child connection.

When Lupus Throws You for a Loop is a handbook for those newly diagnosed, lupus veterans, and those who love them. It takes you on a journey to acceptance acknowledging the difficulty of incorporating lupus into your life. You learn ways to communicate effectively, live with unpredictability, imperfection, stress, and loss of control. You learn to read your body’s signals, enhance your relationships regarding intimacy, and increase your positivity and resilience. The book explores the various types of impact lupus has on adolescents and adults as well as the relationships of your significant others. You learn to feel confidant, proud, strong and empowered. You learn what it is to be a true warrior of lupus. One year after being diagnosed with lupus, the author earned a master’s degree in social work. Rather than focus on the negativity of her diagnosis, Donna Oram decided to volunteer and work in the lupus community for twenty-plus years mentoring positive attitudinal changes. The book is interspersed with personal and professional experiences Donna encountered. Her vast knowledge, insight, and empathy for those who have lupus and those who love them guided her desire to help. She has “walked the walk.”

This book is intended for those of you living with chronic pain that are ready ad willing to learn valuable skills to better manage your chronic pain condition, and as a result, decrease your suffering, improve your quality of life, and achieve long-abandoned cherished goals.

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Now completely updated! The best-selling, most comprehensive guide to lupus, its complications, and management.Lupus is an autoimmune disease that can attack any body organ. It is three times more common in the United States today than it was in the 1980s, so there is an increased need for accurate, practical information on this potentially devastating disease. Lupus expert and clinician Donald E. Thomas, Jr., MD,provides all the helpful information patients need so they can understand and treat this disease.Highlighting amazing advancements in the diagnosis and treatment of lupus, this edition includes new and expanded information on:• The latest FDA-approved medications• How lupus affects different body parts• Advanced labs that improve lupus diagnosis and treatment• The role of the microbiome and anti-inflammatory diets• Updated recommendations for those who are pregnant or breastfeeding• Childhood-onset lupus• The interaction between COVID-19 and lupus• Non-drug treatments, complementary medicine, and medical cannabisThe gold standard since it was first published and carefully reviewed by experts in the field, the latest edition of The Lupus Encyclopedia is essential for patients, health care providers, and families. Bonus content on insurance issues and information about working with lupus and disability is also available online.Endorsed by The Lupus Foundation of AmericaContributors: Jemima Albayda, MD; Divya Angra, MD; Alan N. Baer, MD; Sasha Bernatsky, MD, PhD; George Bertsias, MD, PhD; Ashira D. Blazer, MD; Ian Bruce, MD; Jill Buyon, MD; Yashaar Chaichian, MD; Maria Chou, MD; Sharon Christie, Esq; Angelique N. Collamer, MD; Ashté Collins, MD; Caitlin O. Cruz, MD; Mark M. Cruz, MD; Dana DiRenzo, MD; Jess D. Edison, MD; Titilola Falasinnu, PhD; Andrea Fava, MD; Cheri Frey, MD; Neda F. Gould, PhD; Nishant Gupta, MD; Sarthak Gupta, MD; Sarfaraz Hasni, MD; David Hunt, MD; Mariana J. Kaplan, MD; Alfred Kim, MD; Deborah Lyu Kim, DO; Rukmini Konatalapalli, MD; Fotios Koumpouras, MD; Vasileios C. Kyttaris, MD; Jerik Leung, MPH; Hector A. Medina, MD; Timothy Niewold, MD; Julie Nusbaum, MD; Ginette Okoye, MD; Sarah L. Patterson, MD; Ziv Paz, MD; Darryn Potosky, MD; Rachel C. Robbins, MD; Neha S. Shah, MD; Matthew A. Sherman, MD; Yevgeniy Sheyn, MD; Julia F. Simard, ScD; Jonathan Solomon, MD; Rodger Stitt, MD; George Stojan, MD; Sangeeta Sule, MD; Barbara Taylor, CPPM, CRHC; George Tsokos, MD; Ian Ward, MD; Emma Weeding, MD; Arthur Weinstein, MD; Sean A. Whelton, MD